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Extra Special
Parenting a Child with Multiple Special Needs
By Gwen Morrison
Vogel and her husband learned this the hard way. Having to struggle through the processes and various systems looking for help, Vogel became an expert on special needs rights. Now she fights for the rights of all special needs children and their families.
Dr. Cigales points out that no one will come knocking on your door with this kind of information – you have to educate yourself. While not always easy to find, there are programs offered federally and privately that provide medical and therapeutic services at no cost to the family. "Unless families are informed, they miss out on many opportunities," she says. "Then there's the battle of getting the services rendered – the waiting lists can be long."
Dr. Cigales says the system is known to be under-funded, overwhelmed and in some cases even incompetent, making it even more imperative that parents become educated about all that is available. "Some programs provide home and/or community-based services," she says. "Through these programs, working parents can sometimes find service providers who can come to their home after work hours."
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